Monday, August 13, 2007
It has been some time since I last updated Lukas's blog. This has to do with blogger.com switching to Google's ownership. I tried to "claim" Lukas's old blog but had a hard time. Somehow it seems I had to migrate through a mirad of links before I could get to Lukas's blog and update it. Anyhow, I was able to find the right link to his old blog. Yeah!
Well, Lukas continues to do well and doesn't require any visits to the doctors' whatsoever. Since his return to the U.S. on May 26th from China for his second treatment, Lukas did not get sick or required any medical treatment. He's happy, healthy, and doing well. He is very aware of his surrounding and can communicate to us what he wants including hungry, thirst, or his desire to go outside of the house and play. Language-wise he has not learned any new words other than what he already knew such as eat, daddy, mama, grandma, grandpa, brother, and play. All these words he says in Vietnamese.
What we do see the greatest improvement in is his muscle tone and balance. He was able to sit unassisted (even though we were right beside him in case he needed us of course) in the bath tub for about 20 minutes. He was thoroughly enjoying splashing the water in the tub. We continue to hold his hands and have him walk with our guidance. He has gotten so big and tall that I can not hold him for more than a few minutes. So, the best way is for Lukas to walk on his own as we hold onto both his hands. Sometimes we can even let go of his hands for a minute or two and watch him balance himself. But he always feels insecure and would require our assistance again. All in all, our observation is that Lukas can do many things independently (sit and stand). However, he chooses not to do them more often. We don't unstand why. I guess we just have to wait for the day when he's more motivated to do that himself. For now we just try to get him to do things more. But he protests and gets cranky. Unless we are able to make him forget that he's doing something, then he'll show us his true potential. For example, when we put him in the bathtub, he becomes really excited and playful. He enjoys the water and forgets that we are making him sit unassisted.
Feeding and health-wise, Lukas is never better. He's still med-free and eating very well. He's growing so fast I worry that grandma and I won't be able to hold him or handle him smoothly. Our goal is to have him walk independently soon. We are so excited for all of Lukas's progress and will take him to China again for his third round of stem cell in January 2008.
We really appreciate everyone's love and support for Lukas. We love you all so much! Take care!
Well, Lukas continues to do well and doesn't require any visits to the doctors' whatsoever. Since his return to the U.S. on May 26th from China for his second treatment, Lukas did not get sick or required any medical treatment. He's happy, healthy, and doing well. He is very aware of his surrounding and can communicate to us what he wants including hungry, thirst, or his desire to go outside of the house and play. Language-wise he has not learned any new words other than what he already knew such as eat, daddy, mama, grandma, grandpa, brother, and play. All these words he says in Vietnamese.
What we do see the greatest improvement in is his muscle tone and balance. He was able to sit unassisted (even though we were right beside him in case he needed us of course) in the bath tub for about 20 minutes. He was thoroughly enjoying splashing the water in the tub. We continue to hold his hands and have him walk with our guidance. He has gotten so big and tall that I can not hold him for more than a few minutes. So, the best way is for Lukas to walk on his own as we hold onto both his hands. Sometimes we can even let go of his hands for a minute or two and watch him balance himself. But he always feels insecure and would require our assistance again. All in all, our observation is that Lukas can do many things independently (sit and stand). However, he chooses not to do them more often. We don't unstand why. I guess we just have to wait for the day when he's more motivated to do that himself. For now we just try to get him to do things more. But he protests and gets cranky. Unless we are able to make him forget that he's doing something, then he'll show us his true potential. For example, when we put him in the bathtub, he becomes really excited and playful. He enjoys the water and forgets that we are making him sit unassisted.
Feeding and health-wise, Lukas is never better. He's still med-free and eating very well. He's growing so fast I worry that grandma and I won't be able to hold him or handle him smoothly. Our goal is to have him walk independently soon. We are so excited for all of Lukas's progress and will take him to China again for his third round of stem cell in January 2008.
We really appreciate everyone's love and support for Lukas. We love you all so much! Take care!
Monday, April 09, 2007
We will go to China for Lukas's second stem cell treatment tomorrow. We are so excited. But, the plane ride will be difficult. We will miss all our friends and the rest of our family members. We love you.
Lately Lukas can go from lying on his back to sitting up. Especially when you tickle his tummy, he will sit right up. We are really excited. However, he doesn't like to be in the sitting position and will come back down to lying on the ground. Unless I can distract him with a toy, then he will remain in the sitting position for awhile. But he hates sitting for some reason. His is always now saying a few more words like "okay" and "daddy" and "anh" (this is older brother in Vietnamese). His walking in the walker is better and he can walk when we hold his hands to support him. He can't walk independently yet, but we're slowing getting there I think.
Good luck to everyone! We love you so much! Take care. Email me if you need anything AnnaNo2007@yahoo.com
Lately Lukas can go from lying on his back to sitting up. Especially when you tickle his tummy, he will sit right up. We are really excited. However, he doesn't like to be in the sitting position and will come back down to lying on the ground. Unless I can distract him with a toy, then he will remain in the sitting position for awhile. But he hates sitting for some reason. His is always now saying a few more words like "okay" and "daddy" and "anh" (this is older brother in Vietnamese). His walking in the walker is better and he can walk when we hold his hands to support him. He can't walk independently yet, but we're slowing getting there I think.
Good luck to everyone! We love you so much! Take care. Email me if you need anything AnnaNo2007@yahoo.com
Friday, March 09, 2007
Yesterday, Lukas saw his neurosurgeon. Lukas has been getting regular CT scans for his brain for the last 22 months due to the fluid sac that resides in his brain. After his accident at 1 year of age (he's now 38.5 months), Lukas lost about 40% of his brain mass. That empty space was filled by a fluid sac that just wouldn't resolve. So, he never really had a full brain. Doctors wanted to monitor this sac of fluid which didn't seem to get smaller.His brain mass didn't seem to grow either. Right before we went to China for stem cell last October, Lukas had another scan. That scan (the 5th since his injury) showed the same thing: unchanged. Doctors told us his brain might never grow if the injury was severe enough. We prayed that stem cell would help him. Today, Lukas is doing great. Clinically, we see he's made alot of improvments since stem cell. He's now talking, eating every kind of solid food, and following commands such as clap your hands, give me ahigh five, say some words like mom, dad, eat, andgrandma, etc. He also responds to his name calling and understands what we tell him. He can also balance his weight for a few seconds when you let go of his support. Yesterday, Lukas's neurosurgeon took another scan (his 6th since the injury) and told us the surprising news.The fluid sac is almost completely gone and his BRAIN MASS HAS GROWN SIGNIFICANTLY. His brain mass is now completely full inside the cranium and he is on the road to recovery. The doctor and nurses applaud our efforts and told us to continue to do whatever we're doing for Lukas's recovery. He's made so much recovery it's incredible. Doctors and nurses are very amazed. In the last 2 months, post stem cell treatment, Lukas has graduated from all his doctors. His neurologist, GI, pedi opthamologist, and now his neurosurgeon, all tell us the same thing. He's healthy, happy, and recovering. So, they don't want to see him on a regular basis anymore unless something comes up. In the meantime, we will continue to give him therapy, special education, take him to China for a few more stem cell treatments, and keep him safe and happy. Thank you so much for your continue support, love, and prayers. We love you all so much.
Thursday, December 07, 2006
Thanks for checking up on Lukas
Hi Everyone. I want to say thanks to all those who emailed me asking about my son's progress. We greatly appreciate it. I know you all care about his progress, especially after the stem cell treatment in China. I've also been interviewed by a number of agencies who are working on stem cell research or articles. In all instances, everyone wants to know what changes Lukas is making. As promised, here's the list of things Lukas has improved thus far:
My son's diagnosis is (severe) brain injury leading to Cerebral Palsy.
1 - Eating solid foods - Before the trip to China, my mother and I would never dare give Lukas any chunky food such as steamed carrots or veggies. We couldn't give him bread or anything that required some chewing before swallowing. He could drink fluids fine. He loves eating soups and hamburgers. But, we also had to mix it up with some fluids and mash it up pretty good. He doesn't like pureed foods, just really mashed up foods. If we gave him something chunky, he would move it around and swallow it whole. Then gag and choke. So, we never dared gave him anything chunky. After the first SC treatment, Lukas began to have a huge appetite. He was eating a large bowl of porridge and other soups. We normally just give him a small bowl and it was a huge task making him finish it. Then, we started experimenting by giving him larger pieces of food such as soft veggies and chips. He loves the crunchy sounds the chips make. Upon return to the US, he is now completely on solid foods. He can pretty much each anything that is chewable. It's pretty amazing. In fact, he finished a slice of pizza two days ago. We would tear the the pizza into bite sized pieces and pop it in his mouth. He would chew and swallow nicely. We are now teaching him how to use a sippy cup. He alwasy taken liquids using the bottle. So, now we will advance to a sippy cup.
2 - MOTOR skills - The first thing his therapist noticed was how Lukas's trunk muscle has strenghten. Before we had to careful hold him, and provide maximum trunk support to keep him upright. Otherwise, he would flop over, backwards, and possibly hurt himself. Now, with my right hand (I only weigh 100 pounds), I can hold his entire body upright and he will balance nicely. He started walking in his walker back in May. But now, he is walking faster and stronger in it. His ability to balance is pretty amazing. He likes to jump alot. So I put him on the bed. I support his upper trunk with both my hands. As he is jumping, I would slowly move my down towards his hips and thighs. When he's really into the jumping motion, I even let go of both hands for a few seconds. He is able to maintain the posture while jumping. That is pretty amazing. To jump and maintain your posture at the same time. For Lukas, that is huge.
SITTING: Before the stem cell, Lukas could sit in the tripod postion (legs crossed in front, both hands on the floor in front of the legs) for 10-15 minutes. He always liked having someone sit behind him to provide the support. After the stem cell, he seems more independent. He gets mad when we sit behind him. He likes to be left alone. So we put him on the couch and let him sit by himself until he falls over.
3 - COGNITIVE skills - Before the SC treatments, Lukas was in his own world. He did not interact with us much. Sure, he knew who his parents were and who the doctors and nurses were, but he didn't interact with us. He was either quiet or crying when he's unhappy or sees someone he doesn't like (such as the acupuncturist who sticks needles into his head, arms and legs). In the last month, Lukas is very interactive. He can follow simple commands such as "give me five" (he would slap your hand), "clap your hands" (he could clasp his hands alittle closer together), and "do the wah wah" (he would bring his right or left hand up to his mouth and do the "wah wah" sound, like the Indian wah wah). He is also very playful. He often slaps daddy in the face. Daddy makes a yelling sound. Lukas likes that reaction and keeps doing it. Each time daddy yells, Lukas would giggle. We play with him all the time now and his reactions are very appropriate. Before going to China, he would just ignore us or give us a blank stare. Like, he didn't know what was going on or what we were doing. He is such a sweet and playful child now.
If you call his name, he will turn to look at you. If you talk about him or talk to him, he will pause to listen intently. If you talk to his other siblings, he wouldn't pause.
4 - VISION skills - Before the SC treatments, Lukas didn't give much eye contact. Therapists kept asking me whether or not he could see. He wasn't interactive with his toys or surroundings. He didn't notice or care when someone enters the room. Now, he definitely has eye contact with everyone who enters the room. If you come up to him, he will look over to you and give you a smile to acknowlege you. His rehab doc is so impressed with this. His eye doctor is very impressed as well. They say that eye contact is a higher level of vision. If he has eye contact, he is definitely on the road to recovery. Both doctors examined Lukas last week. They had some wonderful things to say about Lukas. Six months ago, all they said were negative things, like Lukas is non-responsive, etc. Lukas's vision is definitely better. He is playing with his toys more and exploring his surrounds. Just the other day, I was holding him on my hip. I was wearing a pink hat and he was tapping it like crazy. As he tapped it, he giggled. Then he was playing with his bottle of milk as I was feeding him. Lukas is still unable to feed himself or hold a bottle. But the fact that he knows the bottle is there is a good thing.
His digestion and overall health is very good. We are keeping him fever-free right now. PLEASE BE AWARE that you need to keep you child healthy 1-2 months after the SC treatments. If your child gets a fever, the immature stem cellls will die. I've quarantined my other children because I want Lukas's stem cells to developed. My sister-in-law is so gracious to offer us her guest house in the Los Altos Hills. Its very quiet and beautiful.
Those are the biggest improvements we've seen to date. I will post more as we see it coming. I just wish he would just stand up and start walking. Now, that would be a miracle.
So, I talked alot about SC treatments. But you know what, GOD is the one treating my son. He is the one that gave me the courage, strenght, and money to take my son on this journey. Although stem cell is a part of my son's treatment, it would never be successful if my prayers weren't answered. I ask for the treatment to work for Lukas. And God answered my prayers. So, I have to give the most credit to GOD and his blessings, then SC treatments.
Email me with questions AnnaNo2007@yahoo.com. Please read this blog first so all or most of your questions would be answered. Then email me with any other questions that are not answer here.
Hi Everyone. I want to say thanks to all those who emailed me asking about my son's progress. We greatly appreciate it. I know you all care about his progress, especially after the stem cell treatment in China. I've also been interviewed by a number of agencies who are working on stem cell research or articles. In all instances, everyone wants to know what changes Lukas is making. As promised, here's the list of things Lukas has improved thus far:
My son's diagnosis is (severe) brain injury leading to Cerebral Palsy.
1 - Eating solid foods - Before the trip to China, my mother and I would never dare give Lukas any chunky food such as steamed carrots or veggies. We couldn't give him bread or anything that required some chewing before swallowing. He could drink fluids fine. He loves eating soups and hamburgers. But, we also had to mix it up with some fluids and mash it up pretty good. He doesn't like pureed foods, just really mashed up foods. If we gave him something chunky, he would move it around and swallow it whole. Then gag and choke. So, we never dared gave him anything chunky. After the first SC treatment, Lukas began to have a huge appetite. He was eating a large bowl of porridge and other soups. We normally just give him a small bowl and it was a huge task making him finish it. Then, we started experimenting by giving him larger pieces of food such as soft veggies and chips. He loves the crunchy sounds the chips make. Upon return to the US, he is now completely on solid foods. He can pretty much each anything that is chewable. It's pretty amazing. In fact, he finished a slice of pizza two days ago. We would tear the the pizza into bite sized pieces and pop it in his mouth. He would chew and swallow nicely. We are now teaching him how to use a sippy cup. He alwasy taken liquids using the bottle. So, now we will advance to a sippy cup.
2 - MOTOR skills - The first thing his therapist noticed was how Lukas's trunk muscle has strenghten. Before we had to careful hold him, and provide maximum trunk support to keep him upright. Otherwise, he would flop over, backwards, and possibly hurt himself. Now, with my right hand (I only weigh 100 pounds), I can hold his entire body upright and he will balance nicely. He started walking in his walker back in May. But now, he is walking faster and stronger in it. His ability to balance is pretty amazing. He likes to jump alot. So I put him on the bed. I support his upper trunk with both my hands. As he is jumping, I would slowly move my down towards his hips and thighs. When he's really into the jumping motion, I even let go of both hands for a few seconds. He is able to maintain the posture while jumping. That is pretty amazing. To jump and maintain your posture at the same time. For Lukas, that is huge.
SITTING: Before the stem cell, Lukas could sit in the tripod postion (legs crossed in front, both hands on the floor in front of the legs) for 10-15 minutes. He always liked having someone sit behind him to provide the support. After the stem cell, he seems more independent. He gets mad when we sit behind him. He likes to be left alone. So we put him on the couch and let him sit by himself until he falls over.
3 - COGNITIVE skills - Before the SC treatments, Lukas was in his own world. He did not interact with us much. Sure, he knew who his parents were and who the doctors and nurses were, but he didn't interact with us. He was either quiet or crying when he's unhappy or sees someone he doesn't like (such as the acupuncturist who sticks needles into his head, arms and legs). In the last month, Lukas is very interactive. He can follow simple commands such as "give me five" (he would slap your hand), "clap your hands" (he could clasp his hands alittle closer together), and "do the wah wah" (he would bring his right or left hand up to his mouth and do the "wah wah" sound, like the Indian wah wah). He is also very playful. He often slaps daddy in the face. Daddy makes a yelling sound. Lukas likes that reaction and keeps doing it. Each time daddy yells, Lukas would giggle. We play with him all the time now and his reactions are very appropriate. Before going to China, he would just ignore us or give us a blank stare. Like, he didn't know what was going on or what we were doing. He is such a sweet and playful child now.
If you call his name, he will turn to look at you. If you talk about him or talk to him, he will pause to listen intently. If you talk to his other siblings, he wouldn't pause.
4 - VISION skills - Before the SC treatments, Lukas didn't give much eye contact. Therapists kept asking me whether or not he could see. He wasn't interactive with his toys or surroundings. He didn't notice or care when someone enters the room. Now, he definitely has eye contact with everyone who enters the room. If you come up to him, he will look over to you and give you a smile to acknowlege you. His rehab doc is so impressed with this. His eye doctor is very impressed as well. They say that eye contact is a higher level of vision. If he has eye contact, he is definitely on the road to recovery. Both doctors examined Lukas last week. They had some wonderful things to say about Lukas. Six months ago, all they said were negative things, like Lukas is non-responsive, etc. Lukas's vision is definitely better. He is playing with his toys more and exploring his surrounds. Just the other day, I was holding him on my hip. I was wearing a pink hat and he was tapping it like crazy. As he tapped it, he giggled. Then he was playing with his bottle of milk as I was feeding him. Lukas is still unable to feed himself or hold a bottle. But the fact that he knows the bottle is there is a good thing.
His digestion and overall health is very good. We are keeping him fever-free right now. PLEASE BE AWARE that you need to keep you child healthy 1-2 months after the SC treatments. If your child gets a fever, the immature stem cellls will die. I've quarantined my other children because I want Lukas's stem cells to developed. My sister-in-law is so gracious to offer us her guest house in the Los Altos Hills. Its very quiet and beautiful.
Those are the biggest improvements we've seen to date. I will post more as we see it coming. I just wish he would just stand up and start walking. Now, that would be a miracle.
So, I talked alot about SC treatments. But you know what, GOD is the one treating my son. He is the one that gave me the courage, strenght, and money to take my son on this journey. Although stem cell is a part of my son's treatment, it would never be successful if my prayers weren't answered. I ask for the treatment to work for Lukas. And God answered my prayers. So, I have to give the most credit to GOD and his blessings, then SC treatments.
Email me with questions AnnaNo2007@yahoo.com. Please read this blog first so all or most of your questions would be answered. Then email me with any other questions that are not answer here.
Tuesday, November 14, 2006
Back in America! Yeah!
We're back... So I lied about updating one last time before we leave Shenzhen. We're back home now safe and sound. Lukas and I still have jet lag issues. He sleeps during the day and is up right now. It's 12:55 A.M. which is 4:55 P.M. Shenzhen time. He usually sleeps around 9 P.M. So I will have to stay up late and play with him for another 5 hours or so. Daddy is also up keeping us company. I feel so bad for daddy because he's been taking care of us and busy at work also. He's such a wonderful daddy!!!
So, Lukas got his final spinal injection on Monday, November 6th. The following day Daddy arrived in Shenzhen. We picked Daddy up and headed to the hospital for Lukas's daily NGF. The doctor gave Lukas a high dosage of NGF. We were told Lukas's treatment is now complete. So, we decided to hang out and chill for the next couple of days. Then we will head back to America on Friday afternoon.
I also did some shopping because I plan to sell some items when I get back to the States. I want to raise some money for Lukas's next treatment.
Lukas, Daddy, and I went to a Japanese Teppanyaki buffet. It was cheap and awesome. Basically you get all you can eat fillet mignon, fish, meats, seafood, veggies, etc.; and the chef cooked them at your table. It was an awesome restaurant. We love Shenzhen because the food is good and inexpensive. I think I've gained about 2 kilos being here. :) J/K...
So, overall, my husband and I are very happy with the experience in Shenzhen. We have no regrets. Lukas is showing some improvements already. We are excited to see what will be going on in the next few months. When we were in Nanshan Hospital, we met some people who were there for their second or third trip. They or their family member had made alot of improvements. We are really excited and hopeful. If things work out, we plan to take Lukas back to Shenzhen for another round of treatments.
Take care everyone and feel free to email me at AnnaNo2007@yahoo.com if you have any questions or comments. We love you all. Again, we want to express our gratitude to all those who made this trip possible by mentally and/or financially supporting Lukas. You know who you are!
We're back... So I lied about updating one last time before we leave Shenzhen. We're back home now safe and sound. Lukas and I still have jet lag issues. He sleeps during the day and is up right now. It's 12:55 A.M. which is 4:55 P.M. Shenzhen time. He usually sleeps around 9 P.M. So I will have to stay up late and play with him for another 5 hours or so. Daddy is also up keeping us company. I feel so bad for daddy because he's been taking care of us and busy at work also. He's such a wonderful daddy!!!
So, Lukas got his final spinal injection on Monday, November 6th. The following day Daddy arrived in Shenzhen. We picked Daddy up and headed to the hospital for Lukas's daily NGF. The doctor gave Lukas a high dosage of NGF. We were told Lukas's treatment is now complete. So, we decided to hang out and chill for the next couple of days. Then we will head back to America on Friday afternoon.
I also did some shopping because I plan to sell some items when I get back to the States. I want to raise some money for Lukas's next treatment.
Lukas, Daddy, and I went to a Japanese Teppanyaki buffet. It was cheap and awesome. Basically you get all you can eat fillet mignon, fish, meats, seafood, veggies, etc.; and the chef cooked them at your table. It was an awesome restaurant. We love Shenzhen because the food is good and inexpensive. I think I've gained about 2 kilos being here. :) J/K...
So, overall, my husband and I are very happy with the experience in Shenzhen. We have no regrets. Lukas is showing some improvements already. We are excited to see what will be going on in the next few months. When we were in Nanshan Hospital, we met some people who were there for their second or third trip. They or their family member had made alot of improvements. We are really excited and hopeful. If things work out, we plan to take Lukas back to Shenzhen for another round of treatments.
Take care everyone and feel free to email me at AnnaNo2007@yahoo.com if you have any questions or comments. We love you all. Again, we want to express our gratitude to all those who made this trip possible by mentally and/or financially supporting Lukas. You know who you are!
Sunday, November 05, 2006
Today, Monday, Lukas will get his last and 7th stem cell treatment, another spinal injection. SI is painful and I feel so bad for my little guy. We will keep this IV line for daily NGF until Thursday. We will leave for the Hong Kong airport on Friday afternoon. I miss this place already.
Tuesday morning daddy will come to take us home. We are so excited to see daddy soon. We miss him, and the other two boys very much. I will pick my husband up at the Ferry Station close to my apartment. From the Hong Kong airport, you can take the ferry to Shenzhen. It's faster and cheaper. Since my apartment is next to the peninsula, that's where the ferry will arrive. So we will pick up daddy and then head to the hospital for Lukas's daily NGF.
Anyhoo, we will miss everyone very much. After 5 weeks, you get to know people and you become their friends. So, I feel like I miss everything here already. The docs, nurses, people who work at the apartment, people we buy food/fruits daily from, etc.
Well, see y'all soon and I'll update this blog at least one more time before we leave.
Tuesday morning daddy will come to take us home. We are so excited to see daddy soon. We miss him, and the other two boys very much. I will pick my husband up at the Ferry Station close to my apartment. From the Hong Kong airport, you can take the ferry to Shenzhen. It's faster and cheaper. Since my apartment is next to the peninsula, that's where the ferry will arrive. So we will pick up daddy and then head to the hospital for Lukas's daily NGF.
Anyhoo, we will miss everyone very much. After 5 weeks, you get to know people and you become their friends. So, I feel like I miss everything here already. The docs, nurses, people who work at the apartment, people we buy food/fruits daily from, etc.
Well, see y'all soon and I'll update this blog at least one more time before we leave.
Friday, November 03, 2006
Wow, it's Friday and I haven't kept up with this blog. Sorry everyone. Like I said before I get exhausted after putting Lukas to sleep that I also fall asleep too.
So, Lukas has his 5th stem cell treatment last Monday, October 30th, followed by three days of NGF through IV. I asked the doctor to put in t he IV line for Lukas while he is sleeping for the spinal injection. I was worried that day because Lukas slept for so long and didn't wake up after the injection. I was worried they used too much medicine on him. I think it was also his nap time, so he just slept longer than usual. We kept the IV line through Friday, November 3rd, because Lukas got his 6th stem cell treatment today through IV. So, that took about 3 hours to finish. First he got a saline bag, then the stem cell bag, followed by the NGF bag. So all three bags, took forever to get into his system. We were so exhausted when we got home. It was pretty late when we finally got home and had dinner. It was nice to get out of the hospital though. Everything is so closed up and stuffy in there. Not to mention there are so many sick people around you. And, alot of sad stories too.
A fews days ago, I saw a man crying so loud in front of the hospital. He cried for about 4 hours. His 2 year old son was ran over by a car and passed away. Then there was another 8 year old in ICU because he was also ran over by a car. He was in a coma and is now recovering slowly. Poor thing.
Anyhow, Lukas is crying so I gotta go. We will get our last treatment on Monday and then daddy will be here Tuesday to take us home Friday, November 10th. We are so excited to go home. I miss my boys so much.
So, Lukas has his 5th stem cell treatment last Monday, October 30th, followed by three days of NGF through IV. I asked the doctor to put in t he IV line for Lukas while he is sleeping for the spinal injection. I was worried that day because Lukas slept for so long and didn't wake up after the injection. I was worried they used too much medicine on him. I think it was also his nap time, so he just slept longer than usual. We kept the IV line through Friday, November 3rd, because Lukas got his 6th stem cell treatment today through IV. So, that took about 3 hours to finish. First he got a saline bag, then the stem cell bag, followed by the NGF bag. So all three bags, took forever to get into his system. We were so exhausted when we got home. It was pretty late when we finally got home and had dinner. It was nice to get out of the hospital though. Everything is so closed up and stuffy in there. Not to mention there are so many sick people around you. And, alot of sad stories too.
A fews days ago, I saw a man crying so loud in front of the hospital. He cried for about 4 hours. His 2 year old son was ran over by a car and passed away. Then there was another 8 year old in ICU because he was also ran over by a car. He was in a coma and is now recovering slowly. Poor thing.
Anyhow, Lukas is crying so I gotta go. We will get our last treatment on Monday and then daddy will be here Tuesday to take us home Friday, November 10th. We are so excited to go home. I miss my boys so much.
